I was immediately taken with Sharlie’s story and knew I had to contribute something, however small it may be.
Back in 2007, as a new mother of three, Cystic Fibrosis touched my life. Three weeks after having a sweet, perfectly healthy baby girl I recieved a phone call from my doctors clinic saying they needed me to come in to discuss some test results. When I arrived for my appointment, I took a seat in a tiny exam room, I watched my sweet little newborn sleeping in her carseat in front of me and when the doctor walked in and sat down I had no idea what he was about to tell me. I had assumed the test results were mine, but when he looked at me and told me that one of Addie’s newborn screens had come back positive for Cystic Fibrosis and that she likely had this debilitating disease, nothing could have prepared me.
She loves to read.
She loves to laugh.
She has an infectious smile.
And the best hugs on the planet.
Sharlie is also awaiting a double lung and heart transplant.
She is an inspiration.
A fighter.
A miracle.
*katie says
I don’t know Sharlie personally, but I’ve seen her in my ward building and have since read her story. My husband’s cousins have CF and it pains us to know of others struggling so terribly. Thanks for sharing your creativity for such a great cause.
Mique says
THANK YOU Rebecca- for adding your AMAZING printables and for writing from your heart. I appreciate your willingness to jump on board and be so supportive. Thank you thank you thank you! xoxo
Sarah says
How awesome. Going to check them out.
Diane says
I will head over and have a look…I have a friend who has had 2 lug transplants due to CF.
Kim says
Wow! She sounds like an amazing person. That must have been unbelievably hard for your family to go through something like that too. Scary. I am off to look at the shop!